Treatments and tests

Cervical Screening Registry

The Cervical Screening Registry (CSR) is a part of the WA Cervical Cancer Prevention Program.

The CSR manages the Register – a central confidential database of Pap smear and other cervical test results from women screened in WA. This includes cervical biopsy and human papillomavirus (HPV) test results.

In late 2017, a new National Cancer Screening Register will be established, replacing the eight state and territory-based registers.

Find out more about the new Register on the Australian Department of Health website (external site).

How information is collected and used

How is information collected?

Currently, when you have a Pap smear or other cervical screening test, some of this information is sent to the CSR by the pathology laboratory that examines your test. This happens automatically, unless you have chosen not to have your information included on the Register (see 'Opting-off the register' below).

Information is collected by the CSR, as required by the Health (Cervical Screening Register) Regulations, 1991 (WA) (external site).

What type of information is collected?

Information held on the Register may include:

  • your name
  • your date of birth
  • your address
  • your Medicare number
  • the date and result of each Pap smear or other cervical screening test
  • the name, address and provider number of the healthcare provider that requested or carried out your test
  • the name and address of the laboratory examining your test.

How is my information used?

The CSR uses information on the Register for the following reasons:

  • to check when your next Pap smear is due and to send a reminder letter, if you are overdue
  • to follow-up with your healthcare provider after an abnormal or unsatisfactory test result
  • to provide your healthcare provider with a complete and up-to-date record of your results.

The CSR also uses the information:

  • to publish statistics for increasing public awareness
  • for service planning, performance monitoring and evaluation
  • for national reporting requirements
  • for approved research into cervical cancer and its prevention.

Data provided for public awareness and national reporting do not contain any information that would identify you or any other woman in the Register.

These uses are set out in the Health (Cervical Screening Register) Regulations, 1991 (WA) (external site).

Privacy and access

How is my information kept private?

The privacy of the information held by the CSR is protected by law – Health (Cervical Screening Register) Regulations, 1991 (WA) (external site).

The regulations protect your privacy, meaning that only yourself and those directly involved in your care (your healthcare provider and the laboratory that examines your test) are able to access your results. This assists the healthcare providers involved in your care and ensures the most appropriate follow-up is recommended.

How do I access my own record?

It is recommended that you seek the support of your healthcare provider if you wish to obtain your cervical screening history from the CSR, as results are in a coded format.

You can also directly request access to your own record by contacting the WA Cervical Cancer Prevention Program (see contact details at the end of this page). This request must be provided in writing. Please include your full name, date of birth, address and Medicare number, so the CSR can identify the correct record. If you believe the information is inaccurate or incomplete, you can request this be corrected.

Updating my contact details

We can only send you a Pap smear reminder if we have your correct and current details. If you have changed your name or address since your last Pap smear or other cervical screening test, you can let us know using one of the below methods:

Please ensure you provide your full name, date of birth, address and Medicare number so the CSR can identify the correct record.

Opting-off the Register

If your test results are not recorded in the Register, the CSR will be unable to send a 'reminder' letter should you become overdue for your next cervical screening test.

If you choose not to have your results sent to the Register, you must inform your healthcare provider at the time of the test. Your healthcare provider will then notify the examining laboratory of your request.

If you would like to withdraw your complete record from the Register, please notify the WA Cervical Cancer Prevention Program (WACCPP) in writing. Contact details can be found at the end of this page. Please include your full name, date of birth, address and Medicare number to ensure the CSR can identify the correct record. Upon request for withdrawal, the CSR will send you a letter of acknowledgement.

Each time you have a Pap smear or other cervical screening test in the future, you will need to tell your healthcare provider that you do not want your results to be forwarded to the CSR.

Booking a Pap smear

To book an appointment, contact your healthcare provider or see where I can have a Pap smear.

The CSR does not offer a service for booking Pap smears; it simply records the results and sends reminders for overdue cervical screening tests.

Making a complaint

To make a complaint regarding the CSR, please contact the King Edward Memorial Hospital Customer Service Unit (external site).

If this approach does not address or resolve the complaint, then the matter may be taken to the Health and Disability Services Complaints Office (HaDSCO) (external site).

More information

WA Cervical Cancer Prevention Program
1070 Hay Street
West Perth WA 6005
Phone: 9323 6788 or 13 15 56 (cost of a local call)
Email: cervicalscreening@health.wa.gov.au
Fax: 9323 6711


Acknowledgements
WA Cervical Cancer Prevention Program

This publication is provided for education and information purposes only. It is not a substitute for professional medical care. Information about a therapy, service, product or treatment does not imply endorsement and is not intended to replace advice from your healthcare professional. Readers should note that over time currency and completeness of the information may change. All users should seek advice from a qualified healthcare professional for a diagnosis and answers to their medical questions.

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